Taking on the challenges of living with a disability
"LIFE is meant to be lived and that is what we need for our kids" is what Janelle Dennien wants for her son who has a disability.
There are many challenges to living with a disability in the South Burnett and a group of parents and carers of adults with disabilities came together to ready themselves for the roll out of National Disability Insurance Scheme in Queensland.
Among the main concerns of the group were accommodation and housing for their children when they pass away as well as keeping their adult children occupied, social and engaged.
One of the biggest challenges the group of parents said they faced living regionally was lack of services for people with a disability in the area and the distance they had to travel for services.
Audrey Palmer was concerned about what was going to happen after she died.
"What happens after we die? We need to know they will be looked after in a suitable way, the way we want it.
"Because they could fall through the cracks," Mrs Palmer said.
Lorraine Goodchild said the NDIS needed to recognise that every person living with a disability had different needs.
"The NDIS scheme is about recognising individualised needs," Mrs Goodchild said.
Madeline Scheele's grown up son has autism and she said there were plenty of early intervention and school-age programs for children with autism but were left out when they reached adulthood.
Living with a disability means travelling to Toowoomba and Brisbane for the dentist, orthodontist, speech and occupational therapy.
The mums wanted to set up strategies for their children to be set up to live without them and not rely on their other children as their carer.
For more information about upcoming NDIS Readiness workshops in the South Burnett phone Parent to Parent Queensland on 07 54727072 or free call on 1800777723.