Lilith Stout gets a kiss from mum Sarah Baltus as the baby born 16 weeks premature prepares to celebrate her first birthday.
Lilith Stout gets a kiss from mum Sarah Baltus as the baby born 16 weeks premature prepares to celebrate her first birthday. Adam Hourigan

Milestone for miracle baby Lilith

ABOUT 12 months ago, Wondai mum Sarah Baltus was rushed to hospital with complications stemming from her pregnancy.

Her soon-to-be-born baby daughter was getting impatient and decided she wanted to see the world a little earlier than expected.

Baby Lilith was born 16 weeks premature and what followed was a harrowing year of hospital stays, doctor's visits and sleepless nights.

"It's been difficult year," Ms Baltus said.

"Lilith and I were in the special care nursery for 87 days all up and she was released about 20 days before her due date.

"I had to hang around in Brisbane for a week after that.

"Lilith came home on oxygen support and we had to wait a week to see how she was going on the oxygen."

Through this time Ms Baltus, Lilith and her dad were supported by a GoFundMe page set up by their family.

All this money was spent on food and baby clothes, along with fuel to drive Lilith's dad to and from Brisbane while he worked.

Baby Lilith is now about two weeks shy of her first birthday.

Ms Baltus' family had planned a small party but it has been put on hold while Lilith goes back to hospital for another round of surgery.

The infant suffers from patent ductus arteriosus, a condition where the valve connecting a baby's heart to the umbilical cord doesn't seal after birth.

She was scheduled for surgery earlier this year but a bout of bronchitis delayed the operation.

Lilith also has chronic lung disease caused by tubes that fed her oxygen in those early weeks.

"The doctors say that could hang around forever but it usually turns into asthma," Ms Baltus said.

Despite the health concerns, both mum and bub are doing well.

"She's actually a pretty good baby," Ms Baltus said.

"She doesn't cry unless I'm bit late for a feed and even then she just looks at me and says, 'come on'."

For anyone dealing with similar complications Ms Baltus said they should look for the joy in every day.

"All I can say is take every day as it comes, look at all the positives and get a lot of support," she said.

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