Parents grieve over tragic loss of twin baby boys
FOUR weeks ago, Bec Miller and her husband were awaiting the birth of their identical twins, and their son, Cale, was looking forward to playing with two new brothers.
But a lot can change in four weeks. The family now grieves the loss of Mason and Blake, victims of twin to twin transfusion syndrome.
Bec had never heard of the syndrome until she received the diagnosis 19 weeks into her pregnancy.
TTTS occurs when irregularities in the blood vessels and sometimes uneven sharing of the placenta means one twin grows at the expense of the other.
A "donor" twin may lack the essential nutrients to survive and excess blood can place the "recipient" twin at risk. Although Bec underwent two amniotic fluid reductions to compensate for the imbalances between her twins, they were not enough.
Bec's boys died in utero within days of each other at about 23 weeks' gestation.
She then gave birth at Nambour General Hospital to two little boys she would never take home.
She said life had shown her its highs and lows in the past five weeks.
"I've gone from feeling on top of the world expecting two little boys. Identical twins are rare," she said.
"And now my five-year-old says, 'I love my brothers. I wish they were here with me'."
Not one to sit and feel sorry for herself, Bec has decided to use her experience to benefit others. She shares her experience with members of TTTS online groups and is organising a fundraiser to be held at Currimundi Lake on December 7, TTTS World Awareness Day.
From 10am, the day will include a sausage sizzle, raffle, and the release of bubbles for little lives lost.
Bec said she hoped the day would contribute to research and one day finding a cure for TTTS.
"It's for all the other ladies and parents, to stop them going through what we've had to go through," she said.
To donate for the raffle or event, phone 0401 187 077.